HRES 524 · 110th Congress · Health

Expressing the sense of the House of Representatives with respect to Diamond-Blackfan Anemia.

Introduced 2007-06-27· Sponsored by Rep. McCarthy, Carolyn [D-NY-4]· House

Bill Progress

Introduced
Committee
House Vote
4
Senate
5
Enacted
Latest: Motion to reconsider laid on the table Agreed to without objection.(2007-10-15)

Plain Language Summary

[AI summary unavailable — showing source text] Recognizes: (1) the importance of the federal government's continued support of Diamond-Blackfan Anemia (DBA) research; and (2) that federal support of comprehensive centers for rare disease patients enhances the ability for experienced doctors to provide the most complete care for each patient. Commends: (1) Schneider Children's Hospital for providing the first DBA Comprehensive Clinical Care Center and developing the DBA Patient Registry; and (2) the Daniella Maria Arturi Foundation and the Diamon-Blackfan Anemia Foundation for their efforts to facilitate collaboration among the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention (CDC) to achieve a successful multidisciplinary approach aimed at shortening the life cycle of success realized between the laboratory and applied patient care. Expresses the sense of the House of Representatives that the government has a responsibility to encourage further efforts to clarify the natural history of DBA, continue efforts to raise awareness and ease access to information about DBA, encourage research efforts that will advance treatment options and seek a cure, encourage NIH to develop a cross-institutiona…

Summarized by Claude AI · Non-partisan · For informational purposes only

Cosponsors (20)

15 Democrats5 Republicans