SRES 141 · 111th Congress · Health

A resolution recognizing June 2009 as the first National Hemorrhagic Telangiecstasia (HHT) month, established to increase awareness of HHT, which is a complex genetic blood vessel disorder that affects approximately 70,000 people in the United States.

Introduced 2009-05-11· Sponsored by Sen. Johnson, Tim [D-SD]· Senate

Bill Progress

Introduced
2
Committee
3
Senate Vote
4
House
5
Enacted
Latest: Referred to the Committee on Health, Education, Labor, and Pensions. (text of measure as introduced: CR S5332)(2009-05-11)

Plain Language Summary

[AI summary unavailable — showing source text] Expresses support for the designation of June 2009 as National Hereditary Hemorrhagic Telangiecstasia (HHT) month. Recognizes: (1) the need to pursue research to find better treatments and a cure for HHT; (2) the HHT Foundation International as the only U.S. advocacy organization working to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected; (3) the importance of comprehensive care centers in providing complete care and treatment for HHT patients; (4) that stroke, lung, and brain hemorrhages can be prevented through early diagnosis, screening, and treatment of HHT; (5) that severe hemorrhages in the nose and gastrointestinal tract can be controlled through intervention and that heart failure can be managed through proper diagnosis and treatments of HHT; and (6) that a leading medical and academic institution estimated that $6.6 billion of one-time health care costs can be saved through aggressive management of HHT in the at-risk population. Acknowledges the need to identify the approximately 90% of the HHT population that has not yet been diagnosed and that is at risk for death or disability due to sudden rupture of the bloo…

Summarized by Claude AI · Non-partisan · For informational purposes only

Cosponsors (2)

1 Democrat1 Republican