HR 594 · 113th Congress · Health

Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2014

Introduced 2013-02-08· Sponsored by Rep. Burgess, Michael C. [R-TX-26]· House

Bill Progress

1
Introduced
2
Committee
House Vote
Senate
Enacted
Latest: Became Public Law No: 113-166.(2014-09-26)

Plain Language Summary

[AI summary unavailable — showing source text] Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education Amendments of 2013 - Amends the Public Health Service Act to revise the muscular dystrophy research program of the National Institutes of Health (NIH). Expands the range of forms of muscular dystrophy included within the program. Requires the research conducted through Paul D. Wellstone Muscular Dystrophy Cooperative Research Centers to include cardiac and pulmonary function research. Requires the Director of NIH to ensure the sharing of data between such centers. Revises the composition of the Muscular Dystrophy Coordinating Committee (MDCC) to include the Social Security Administration and the United States Administration for Community Living. Requires the MDCC to meet at least two times per year. Requires the MDCC Action Plan to provide for: (1) health economic studies to demonstrate the cost-effectiveness of providing independent living resources and support to patients with various forms of muscular dystrophy, (2) studies to determine optimal clinical care interventions for adults with various forms of muscular dystrophy, and (3) the development of clinical interventions to improve the health of …

Summarized by Claude AI · Non-partisan · For informational purposes only

CBO Cost Estimate

Congressional Budget Office

H.R. 594, Paul D. Wellstone Muscular Dystrophy Community Assistance, Research, and Education Amendments of 2014

Jul 25, 2014

As ordered reported by the House Committee on Energy and Commerce on July 15, 2014

Full CBO report ↗

Official non-partisan budget analysis by the Congressional Budget Office

Cosponsors (20)

13 Democrats7 Republicans