S 1417 · 113th Congress · Health

Newborn Screening Saves Lives Reauthorization Act of 2013

Introduced 2013-08-01· Sponsored by Sen. Hagan, Kay R. [D-NC]· Senate

Bill Progress

Introduced
Committee
Senate Vote
4
House
5
Enacted
Latest: Referred to the Subcommittee on Health.(2014-02-07)

Plain Language Summary

[AI summary unavailable — showing source text] Newborn Screening Saves Lives Reauthorization Act of 2013 - Amends the Public Health Service Act to extend and revise a grant program for screening, counseling, and other services related to heritable disorders. Extends a grant program to evaluate the effectiveness of screening, counseling, or health care services in reducing the morbidity and mortality caused by heritable disorders in newborns and children. Expands the program to include evaluation of follow-up care for newborns and their families after screening and diagnosis. Directs the Advisory Committee on Heritable Disorders in Newborns and Children to provide a priority review of a human drug application with respect to a nomination to the recommended uniform screening panel. Requires the Advisory Committee to meet in person at least four times each calendar year with at least two meetings in person. Extends the clearinghouse for newborn screening information. Expands the duties of the clearinghouse to include: (1) maintaining current data on the number of conditions for which screening is conducted in each state; and (2) disseminating available evidence-informed guidelines related to diagnosis, counseling, and treatment wi…

Summarized by Claude AI · Non-partisan · For informational purposes only

CBO Cost Estimate

Congressional Budget Office

S. 1417, Newborn Screening Act of 2013

Jan 17, 2014

Direct spending and revenues analysis for the bill as reported by the Senate Committee on Health, Education, Labor, and Pensions on December 19, 2013

Full CBO report ↗

Official non-partisan budget analysis by the Congressional Budget Office

Cosponsors (17)

10 Democrats7 Republicans