Designating November 7 of each year as ''Shwachman Diamond Syndrome Awareness Day''.

[AI summary unavailable — showing source text] [Congressional Bills 119th Congress] [From the U.S. Government Publishing Office] [H. Res. 1133 Introduced in House (IH)] <DOC> 119th CONGRESS 2d Session H. RES. 1133 Designating November 7 of each year as ``Shwachman Diamond Syndrome Awareness Day''. _______________________________________________________________________ IN THE HOUSE OF REPRESENTATIVES March 24, 2026 Mr. Kean (for himself and Mr. Gottheimer) submitted the following resolution; which was referred to the Committee on Energy and Commerce _______________________________________________________________________ RESOLUTION Designating November 7 of each year as ``Shwachman Diamond Syndrome Awareness Day''. Whereas Shwachman-Diamond syndrome (SDS) is a rare genetic disorder that primarily affects a diagnosed individual's bone marrow, pancreas, and skeleton; Whereas SDS is inherited in an autosomal recessive manner, meaning a person must inherit two faulty copies of the gene, one from each parent, for the disorder to develop; Whereas, typically, the parents of the affected individual do not show signs and symptoms of SDS; Whereas an estimated 2,000 Americans are living with SDS; Whereas this rare condition occurs in …